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Reflections on Juneteenth, freedom, and the MS journey

By Shambrekiá Wise

Juneteenth is a day that carries the profound, heavy, and beautiful weight of liberation. Marking June 19, 1865 — the day the news of emancipation finally reached the enslaved people of Galveston, Texas, two-and-a-half years after the Emancipation Proclamation — it is a celebration of a freedom that was long overdue. It honors a moment when a community of people, who had been forced to live under a system designed to control and exhaust their bodies, could finally reclaim their autonomy.

When you look at Juneteenth through the lens of the multiple sclerosis community, the word "freedom" begins to take on a deeply personal, multidimensional meaning. While the historical and systemic context of Juneteenth is entirely distinct, the underlying emotional concept of fighting for autonomy inside a body and a world that feels restrictive creates a powerful, creative parallel. For the MS warrior, Juneteenth can be a beautiful reminder of what it means to seek, define, and celebrate freedom in every sense of the word.

To receive an MS diagnosis is often to feel as though your physical freedom has been abruptly stripped away. Suddenly, you are bound to an unpredictable schedule of infusions, MRIs, and doctor appointments. You are trapped by the invisible walls of chronic fatigue, nerve pain, or mobility changes. The body, which used to feel like a vehicle of absolute independence, can start to feel like a space where you are constantly being monitored, restricted, and controlled by an unyielding disease.

But freedom, as Juneteenth teaches us, is not just a physical state; it is an emotional and spiritual reclamation.

Just as the ancestors in Galveston had to redefine their lives and build a completely new future after receiving devastatingly delayed news, a person diagnosed with MS must undergo their own process of radical reinvention. True freedom on the chronic illness journey doesn’t mean waiting around for a cure to magically unlock the door. Instead, it looks like choosing to live fully right now, right where you are. It looks like freeing yourself from the expectations of who you "used" to be, and liberating your mind from the anxiety of what tomorrow might look like.

Furthermore, you cannot talk about Juneteenth or MS without talking about the power of the "conglomerate"—the collective community. Liberation was never achieved in a vacuum. It required solidarity, shared strength, and people refusing to let one another fall through the cracks of a harsh system. In the MS community, your friends, family, and fellow warriors act as your ultimate underground network of support. They are the ones who help carry the physical load when your energy is depleted, and who hold space for your spirit when the emotional weight becomes too heavy. They don't just wait for you to find freedom on your own; they actively help you build it.

On Juneteenth, the celebration is loud, joyful, and defiant. It is a reminder that no matter how long the delay, or how heavy the history, the human spirit possesses an extraordinary capacity to break through boundaries.

Whether you are celebrating the profound historical legacy of emancipation, or quietly fighting to reclaim your personal autonomy from a chronic diagnosis, remember that freedom is something you have the right to claim every single day. You are allowed to liberate yourself from forced positivity, protect your peace fiercely, and find joy in the cool evening breeze. True freedom is knowing that even after your body has challenged you, your spirit still belongs entirely to you.