Researchers working with families with children with mental health conditions, medical conditions, and rare disease are seeking recruits for a survey to explore the experiences in, and barriers to, accessing mental health services for parents who are caring for children with mental health conditions, medical conditions, and/or rare disease. The information gathered from the survey is important in helping the researchers identify ways to make access to mental health care easier for families.

Participants are asked to complete this survey if they are a parent or guardian of a child under the age of 18, with a mental health condition, a medical condition, and/or a rare disease, and the child lives in your home. Those agreeing to take part in this study will be asked questions about different aspects of accessing mental health care. While the survey is anonymous, participants may find some of the questions sensitive. Participants can choose to not answer questions that make them feel uncomfortable. 

The survey is in both English and Spanish. To participate, the link to the English survey is www.surveymonkey.com/r/PQFSMVV. The link to the Spanish survey es.surveymonkey.com/r/2DXD5TX. The survey should take approximately 10 to 20 minutes to complete. The majority of the questions are multiple-choice, and at the end of the survey, you will have an opportunity to add any other thoughts you have.

The information that is provided will remain confidential and all results will be deidentified. All data collected will be stored in a secure location. You can withdraw at any time during the survey, up until the time that the “done”’ button is selected at the end of the survey. By completing the survey, you are consenting to participate in the study.

For more information about this project contact Kim Hager or Maria Martinez Calderon at 508-753-5425.